A year after revealing her battle with Stiff-Person Syndrome (SPS), renowned Canadian singer Celine Dion has reportedly lost control of her muscles amid her battle with the disorder.
Dion announced that she had been diagnosed with SPS in December 2022. As she was experiencing spasms that affected her walking and her singing, Dion postponed her 2023 European tour to 2024 but cancelled those shows earlier this year to continue focusing on her health.
The I’m Alive singer made a rare public appearance last month, giving fans hope that her health has been improving. However, according to Dion’s sister, Claudette Dion, her condition has vastly deteriorated.
She is “working hard, but she doesn’t have control over her muscles. What breaks my heart is that she’s always been disciplined. She’s always worked hard,” Claudette stated.
Claudette shared her sister’s current condition in an interview with the French magazine 7 Jours. Claudette, who is also a singer, said that it is Dion’s dream to one day return to the stage, but as the vocal cords and heart are muscles, they do not know what state she would be in.
Claudette highlighted that doctors have not conducted much research about SPS, as it only affects one out of a million people. According to the National Institute of Neurological Disorders and Stroke (NINDS), SPS is an incurable neurological disorder that predominantly affects women. Symptoms of SPS may include stiff muscles in the torso, arms, and legs, as well as greater sensitivity to noise, touch, and emotional distress, which can set off muscle spasms.
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